Alissa is amazing. She's got so many balls in the air right now yet she remains graceful and strong. She's keeping her family engaged and making super decisions alongside Matt as they both stare frustration, fear, and grief in the face. Our whole family got together today at Meg's and Alissa told me about a time when she felt completely overwhelmed and she just sank to the floor for a moment. Quickly by her side were Jo, Sam, and Josh. They all hugged her at the same time and picked up her spirit and compassionately asked if she was ok. Alissa's strength has been passed to her children and they will be forever served by her lessons and her example.
Matt filled me in a bit more today on the nature of Josie's tumor. It is, as expected, a very dangerous and rare DIPG and it is in stage 3. Josie's care is being coordinated by the Dana Farber Cancer Institute in Boston, the best group in the world. A Harvard pediatric oncologist and this institute are working hard to learn how to cure this type of childhood brain cancer. Jo will start her radiation treatments on Monday. The hope is that the radiation shrinks and controls the tumor enough that the doctors can take Josie off of her meds to get her feeling better again. Thirty-three radiation treatments are scheduled over the next six weeks or so, Monday through Friday every morning of the week. Alissa and Matt are relieved to have the treatments start. They want Jo to feel better and hopefully get her off of the meds. They are ready to fight back against this tumor and move Josie towards a cure.
Giada's message to Josie!
Good luck this week sweet Josie. We love you and we are all with you to help you and your family stay strong. XOXO