Yesterday, Matt and Alissa took Jo to Washington D.C. They had a big day at Children's National Hospital. Lots of information on a new trial and Matt and Alissa have decided to go with this study for Josie. There is hope, but it's a scary ride according to Alissa. Josie will be the 1st child in the WORLD to get this particular drug for a pediatric brain tumor. Yes, there are risks, but they need to be taken at this point. Matt and Alissa learned that radiation will only prolong Josie's life, it won't cure her tumor. The first step is an MRI of the brain and spine. Praying that this tumor has not spread into the spine! Josie has been having some back and hip pain. After the MRI, Josie will travel back to DC once a week for 6 weeks to get this treatment. The drug is supposed to boost her immune system and make it attack the cancer cells.
Got a great picture of Kathy's feet today! She had green toe polish, obviously in honor of Josie. Thanks Kathy! I feel so positive about this study. Keep praying and hold onto hope. Since the beginning of time, for every disease that has been cured, someone had to be the FIRST one fixed. Please God let Josie be the FIRST one for this disease and this cure. XO